sábado, 30 de junio de 2012
Thank you everybody , to who has joined our celebrations on the World Vitiligo Day Worldwide, to contribute in many ways to raise awareness towards vitiligo, and signed the petition online on www.25june.org
You can still ask all your friends and colleagues to sign it if they didn't yet, we still have to reach 500.000 signatures by June 25 next year, and many are still missing. TAKE ACTION NOW! be part of the HEAL THE WORLD dream that Michael Jackson had and that we support celebrating the day of his disappearance, he has been a vitiligo sufferer all his lifetime. Help us find a cure! Raise awareness! Claim attention from United Nations to have them recognize WVD as a Memory Day for all years to come, and help point attention of researchers to find a cure for vitiligo, a neglected illness that can destroy one's life by social isolation. Thank you for your commitment !
jueves, 21 de junio de 2012
WORLD VITILIGO DAY
Non-profit VR Foundation works with patient support groups to recognize the neglected skin disease which affects over 100 million people worldwide, and mark World Vitiligo Day by the United Nations.
DATE AND TIME: Friday, June 22, 2012 at 11:00
A crowdsourcing project in healthcare will be among the items discussed at the meeting. The purpose of the project is to gather information and produce relevant data to enable decision-makers to take the measures demanded by payers in rapidly changing healthcare environment.
Background: June 25th is a significant date in the calendar because it marks the passing date of pop-star Michael Jackson, a long-time vitiligo sufferer. The most famous entertainer in the world suffered from this debilitating skin disease from his childhood. “Heal the World”, the song he was most proud to have created, was probably inspired by vitiligo.
VENUE: Aula Magna Università degli Studi “Guglielmo Marconi”, Via Plinio, 44 – 00193 Rome Italy
A PRESS KIT, consisting of the press release, media announcement, the UN petition leaflet, interviews will be made available for the press conference. Materials will be available in English and Italian, and promptly upon request in French, Russian and Chinese.
lunes, 11 de junio de 2012
Estimados amigos/as: El 28 de Junio celebraremos un Taller de maquillaje en Motril, a las 18.15 horas en el Centro Cultural de Motril de la calle Felipe Soto (cerca del Cerro de la Virgen y el paseo de las Explanadas). El taller de maquillaje corrector es de los Laboratorios La Roche Posay. Quien esté interesado/a debe de mandarnos un correo a firstname.lastname@example.org Daremos más información en nuestro Blog http://aspavit-vitiligo.blogspot.com.es/ Un abrazo: ASPAVIT
domingo, 3 de junio de 2012
ASPAVIT estará en el Congreso del 5 al 9 de Junio. ¡¡¡VISÍTANOS!!!